HLH
My youngest daughter has been diagnosed with HLH, a highly aggressive non-cancerous but potentially fatal disease. She’s two months old.
Though I haven’t used this site in quite some time, I have begun a journal to document our experience surviving this disease, in part for my own sanity, and in part for the next parent who seeks a non-medical resource to understand what they might expect.
Blogging about blogging about blogging
Just a brief update should it not be astoundingly clear by my lack of posts—I am currently working on other projects and purposefully neglecting this site. I’ll update the design and content “soon”.